| Pharmaceutical Company | National Organization for Rare Diseases (NORD) |
| Program Address | Patient Assistance Programs P. O. Box 8923 New Fairfield, CT 06812-8923 |
| Toll Free Phone Number | 800-999-6673 |
| Alternate Phone Number | 888-628-6673 |
| Fax Number | 203-746-6896 |
| Guidelines and Notes |
NORD administers a number of different programs for investigational and approved pharmaceutical products manufactured by a number of pharmaceutical companies. NORD is a federation of voluntary health organizations committed to supporting and treating those with rare diseases. They determine how much of the monthly dosage the patient can afford; awards range from 25% to 100% of the monthly dosage. Special phone number: |
| Initiating Enrollment | Call one of the above numbers and specify the drug needed. Each drug has its own application form. |
| Health Provider's Role | The doctor completes and signs the application, attaches a prescription, and verifies the patients diagnosis. |
| Patient's Role | The patient provides financial and insurance information. For some of the drugs proof of patient/household income is required. The patient's signature is required. |
| How Dispensed | Each drug is different. Some are shipped to the physician's office, while others require the patient to pay a handling fee and use a mail order pharmacy. |
| Amount Dispensed | Varies. They usually pay 25-100% of the cost for up to a year. |
| Estimated Response Time | Not specified |
| Refills | Use a new application - required one a year. |
| Limit | Not specified |